In October 2025, a group of clinicians, researchers (including myself), and patient advocates published a peer reviewed letter of correspondence in Nature Communications in response to the NIH “deep phenotyping” study, which involved 75 researchers across a wide range of disciplines. They examined 17 people with post‑infectious ME/CFS and 21 healthy volunteers, who completed an extensive battery including brain imaging, …
“Effort Preference” Is Not ME/CFS: Our Response to the NIH Deep Phenotyping Study
